Super News

Madison is humming along like the champ we all know she is. No issues with the kidney. As a side effect of all that is going on, her platelet levels are better than normal. Normally she would have needed a transfusion, but won't right now. She looks really good. One issue is that with all that water she is drinking she is peeing constantly. What I didn't realize is that because her bladder was essentially unused for all those years, it shrank. Now that her body is processing toxins normally via the kidney they are finding that the bladder doesn't take long to fill up. Talk about worse than a prostate issue. I imagine this will resolve itself over time and the size of the bladder will return to a more normal size. She also says she sees better, and that she can taste food and that the bad taste in her mouth is gone. Most importantly , she believes that she thinks more clearly. What gifts to be bestowed on such a wonderful young lady.


The donor information is unknown largely to the recipient and family. What I did find out is that the first go round with the transplant the donor kidney was rejected because it was only a partial kidney. No indications what that meant. The only information known now about the final donor transplant is that it was from a 23yr old young man. I'm not totally certain, but I believe after a year the two families can opt to meet. That must be incredible for the donor family to see the result of the organ donations as a result of their loss of their loved one. Especially for a child as precocious and special as Madison.


The family is still in need of donations and could use any help possible. See the COTA link above right if so inclined to donate.


On a more touching and personal note. Madison has always commented on how she feels the presence of my daughter Paige after her death. Madison was so in tune, she asked for new clothes on the 1 yr anniversary of Paiges death, she wanted to wear all black on that day. I guess you take it for granted that children also mourn. Madison says since the transplant she feel Paigee beside her all the time now. I'm so happy to know now why I don't feel her presence, she is with her dearest friend; Madison.